A few days ago I went to the park with my friend and her two children. As you know I have five year old twins, one of whom has autism. As all the other children were running around freely, I saw that most of the mothers were on their cellphones, not paying attention. I, of course, was obsessively watching my kids, even hovering around them. My son's "autistic focus" is makes and models of cars and often likes to run into parking lots. Sure enough, as I was darting left and right, he ran for it. I sprinted after him and brought him back over by his sister. After several times I was becoming exhausted. It was at that point that he decided to have an all out meltdown over the noise his swing was making.
I started rubbing his head and shoulders and singing, "Kumbaya" while pushing his forehead up against mine. My friend said, "I'll watch Lila," my daughter. After it was all over and most people were staring, my friend said, "You are a good mom, Wendy. I don't know how you do it." I looked at her frankly and said, "I don't have to take his blood sugar. I don't have to worry about him passing out in the parking lot. That makes it much easier."
I am not trying to compare diseases, but I am used to being stared at. I've spent 28 years taking my blood sugar and insulin in public or cutting someone in line because I needed a soda. I've had everyone I know give me "that look" because I acted super weird when I had low blood sugar and somehow they expected me to apologize for it. I've had enough embarrassing episodes with type 1 diabetes to write a blog only about that.
One time at a meeting for parents with autism, the speaker said, "It is important you push your child's hands down and try to control them when they start hand-flapping." I raised my hand and asked bluntly, "What the hell do I care if my son starts hand-flapping?" She responded, "Well, it's okay now but wait until he is 17." I was quiet but I knew that hand-flapping or "stemming" is important for a child with autism to control their senses. It made me sad that someone would be embarrassed of her own child.
But I digress. After hating diabetes for so long and wanting so bad to break out of my own skin, I realize God gave it to me so I would be strong enough to handle my own child's disease. Although it is harder for me to take care of myself with two kids, I have no problem with it now at all. "That which does not kill you makes you stronger." (Nietzsche) And I'm still alive.
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